NHS England and the Local Government Association have been working to understand the many additional barriers faced by children, young people and adults with a learning disability, autism or both and their families in raising concerns and complaints.
The organisations want to take practical steps to improve people’s experiences and expectations of the complex systems in health, social care and education, and help other organisations be more understanding and proactive in how they listen and respond to people’s concerns.
This work has developed into the ‘Ask Listen Do’ project. The team, which includes two new NHS England Family Carer Advisers, has launched a survey which asks about adult and children’s experience, and their families and paid carers, of raising concerns and making complaints in health, social care and education.
The survey closes on 31 January.